Translate This Page To: Spanish German French Italian Portuguese Norwegian Brought to you From FreeTranslation.com Sarah Rose Current Page Page 1 Page 2 Page 3 Page 4 Page 5 UPDATE: 7-31-10 Hello, I thought I would update Sarah's photos - she had a very important event today!!! Sarah had her very 1st boat ride on our lake!!!!! She had a lot of fun - smiling with every bump the boat made. She seemed to like the wind too, but NOT the sun in her eyes. It was so nice to have her join her sisters and brothers on the boat, even if she couldn't tube, or knee board. She seems to be over the infection that she had in her lungs now. We continue to pray for healing within her body!!! She is scheduled for a swallow study next week, and a speech therapist evaluation - praying for the testing to go well... I pray that all of you are well and that you are enjoying our wonderful summer weather! Blessings to all of you prayer warriors! Diane UPDATE: 6-7-10 Hello Everyone I haven't updated for quite awhile - it has been a very busy spring and now summer is upon us! We continue to go through some struggles within our family, but I know that everyone does, at different times in their lives. I believe it is through these times that my faith is strengthened even more, as I am forced to rely on Him and Him alone. Sarah has been doing well!!!!!! She was on her way outside when I decided to take a picture of her because she looked so cute in her new dress - I was telling her "bye bye" and she waved at me as I was taking the photo. Sarah continues to work on her muscle development, sitting, standing in her stander, turning her head, using her hands, arms, feet, etc. Her mental development is very delayed, yet she is always a very content little girl with life! She is never fussy, just loves to be looking about and is starting to place more things in her mouth to chew on. She is able to get outside now with the warmer weather, but she is still trying to get used to the sunlight. Her favorite movie is the "Little Mermaid" and she watches it very intently, quite often. She LOVES music and pretty lights! She responds well to her pt and ot teachers, and enjoys it when she has class time. We have a wonderful nursing staff - Sarah has MANY moms to love/care for her when I am too busy with the rest of the family and household stuff... We continue to pray for healing within her body in ALL areas! Thank you for your continued prayers for Sarah! May the Lord richly bless each family as you continue to seek out ways to serve our wonderful Lord and Savior! God's blessings to you all! Diane UPDATE: 1-12-10 Sarah celebrating New Years Eve" - our night owl - We continue to work with Sarah to help her develop head control, muscle control and strength while sitting, standing in her walker, on the floor, etc. She works with special education, physical therapy, and occupational therapy people every week. She LOVES the "lights and music sound" learning toys that they bring for her to explore with. She has been staying pretty healthy, and we continue to pray that she will stay that way! We are SO blessed to have her with us and can't believe she is already 4 years old now. Time has flown by and continues to do so. Prayer requests - continue to pray that we can work towards removing of her trach, breathing room air, muscle development and control, and for overall health for her and our family! Blessings to all! Diane ADDED: 9-10-05 Condition=Our unborn daughter has been diagnosed with Trisomy 18. She is due on Nov. 30th, 2005 Comments: My husband and I learned that Sarah was a special child, with Trisomy 18 (Edward's syndrome) when I was about 17 weeks along. We were told SO many times to abort her (actually the doctors call it "deliver her early", instead of using the term abortion). We have had many battles with doctors, and nurses as they are taught in medical school to allow these babies to die, and NOT to treat, or care for them (it was the same way in the 60's-70's with Trisomy 21 (Downs syndrome). It seems that there is no value to human life anymore (God talks about this happening as we get closer to His return), unless you are perfect (in the world's eyes). I began to search on the internet for any and all information on the subject trying to educate myself to prepare for her precious arrival on how we could help her, as none was given by any of the medical profession except for the abortion idea. I have met MANY families in my search, that also have Trisomy 18 children that are living and have become friends with many of the moms. There are many families that have chosen life for these special children as we have, and they are a wonderful resource of information and support. We continue to trust the LORD with Sarah's life, and lean on Him for our strength, and for her continued healing. It is a daily battle, yet we will stand firm in our faith and speak boldly about God's love for ALL children, regardless of any health problem. Please join us in praying for Sarah! Thank you for ALL of your prayers! God Bless, Diane I thought I would send you a photo of our unborn daughter, Sarah, taken on 8/17/05. She weighed in at 1 lb. 2 oz. Isn't she beautiful?! Thank you for all prayers for her! We are continuing to pray for a complete healing, which includes: that her body will get rid of the extra 18th chromosome, that the VSD (hole) in her heart will close, that her brain will develop normally, that her hands will be able to open and close, that she will be able to nurse, breathe, etc. She is swallowing amniotic fluid, which is a good sign! We continue to trust the Lord and pray that His glory will be revealed through her life! God Bless, Rik and Diane If you would like to add a page for your child, click on "Add A Child" below. Please be aware that once a child's page is added to this website the information becomes public. Please keep this in mind when posting information. It is recommended that you DO NOT post your full names or addresses unless using a post office box. We can not be responsible for who views these pages as they are open to the general public. We suggest a password protected page for optimum privacy. Need information? 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