Children of Promise ~ Sarah Rose






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Sarah Rose

Sarah Rose



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UPDATE: 1-12-10

Sarah celebrating New Years Eve" - our night owl -

We continue to work with Sarah to help her develop head control, muscle control and strength while sitting, standing in her walker, on the floor, etc. She works with special education, physical therapy, and occupational therapy people every week. She LOVES the "lights and music sound" learning toys that they bring for her to explore with. She has been staying pretty healthy, and we continue to pray that she will stay that way! We are SO blessed to have her with us and can't believe she is already 4 years old now. Time has flown by and continues to do so. Prayer requests - continue to pray that we can work towards removing of her trach, breathing room air, muscle development and control, and for overall health for her and our family!

Blessings to all!
Diane



ADDED: 9-10-05

Condition=Our unborn daughter has been diagnosed with Trisomy 18. She is due on Nov. 30th, 2005

Comments:

My husband and I learned that Sarah was a special child, with Trisomy 18 (Edward's syndrome) when I was about 17 weeks along. We were told SO many times to abort her (actually the doctors call it "deliver her early", instead of using the term abortion). We have had many battles with doctors, and nurses as they are taught in medical school to allow these babies to die, and NOT to treat, or care for them (it was the same way in the 60's-70's with Trisomy 21 (Downs syndrome). It seems that there is no value to human life anymore (God talks about this happening as we get closer to His return), unless you are perfect (in the world's eyes).

I began to search on the internet for any and all information on the subject trying to educate myself to prepare for her precious arrival on how we could help her, as none was given by any of the medical profession except for the abortion idea. I have met MANY families in my search, that also have Trisomy 18 children that are living and have become friends with many of the moms. There are many families that have chosen life for these special children as we have, and they are a wonderful resource of information and support.

We continue to trust the LORD with Sarah's life, and lean on Him for our strength, and for her continued healing. It is a daily battle, yet we will stand firm in our faith and speak boldly about God's love for ALL children, regardless of any health problem. Please join us in praying for Sarah!

Thank you for ALL of your prayers!
God Bless,
Diane

I thought I would send you a photo of our unborn daughter, Sarah, taken on 8/17/05. She weighed in at 1 lb. 2 oz. Isn't she beautiful?! Thank you for all prayers for her! We are continuing to pray for a complete healing, which includes: that her body will get rid of the extra 18th chromosome, that the VSD (hole) in her heart will close, that her brain will develop normally, that her hands will be able to open and close, that she will be able to nurse, breathe, etc. She is swallowing amniotic fluid, which is a good sign! We continue to trust the Lord and pray that His glory will be revealed through her life!

God Bless,
Rik and Diane



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