 
 
UPDATE: 5-5-08
If you have been on my email list for any length of time - or if I am part of an email group that you are on, then you may have heard this more than several times - but it never gets old to me.
Tomorrow, May 5th, Jonathon will be EIGHT years old!
Whoopee! You may think....but think again of God's great mercy and faith.
Jonathon was born 3 months too soon, eight years ago, to a drug addicted mother. His tiny 2# 9 ounce body was ravaged by in uterine drug exposure and it was to weak to handle his early arrival. Five blood transfusions, a ventilator for 57 days, a host of test, surgeries, procedures, pins, needles, medications - all to keep him alive ... and a birth mom that was no where to be found.
Abandoned for three months in the NICU, we were called to see if we would take this medically fragile placement. We were told very negative things about this little life... "he is very sick...he must remain homebound for at least a year...he will spend his first year in and out of the hospital because his lungs are so damaged...he will be blind...never walk...probably not talk...he probably won't even make it to his first birthday.
Jonathon's first few years were very scary - the test, procedures, needles, medications, hospital stays (although instead of being in and out of the hospital - he was only in there a total of 11 days!) and grim prognosis continued.
A lot the medical community knows - huh?
Jon Jon is my amazing one-eyed, autistic wonder. Struggling still with 23 diagnosis/issues - like being blind in one eye - with severe visual impairments in his left eye, dependent on a feeding tube for all nutritional intake, global and gross delays, behavioral issues, social delays - he still never misses a beat. He walks, he climbs, he jumps and hops. Although his vocabulary is restricted to scripting and echolalia - he IS talking, he can write his name, name objects in ASL, English, Spanish, French and some Japanese! And he most certainly bypassed that first birthday some time ago.
Jon is a difficult child that has suffered needlessly due to the drugs his birth mom took and his premature labor. His delays are global and gross, he is no where near what a more typical 8 year old would be like. But Jon doesn't care, he loves life and finds pleasure in such simple things, like being able to control a DVD with the remote, playing with leaves outside, jumping on the trampoline, riding on a tractor, swimming in a pool and swinging in a swing. Life to Jon is good...difficult...but good.
Life for me is richer, fuller, purposeful and more challenging...but I wouldn't have any other way.
Happy birthday my little man - Being eight really is great!
UPDATE: 3-19-08
Oh for Pete's sake - the lady that called me from the Neurology Lab today to confirm all of tomorrows procedures decided after speaking to me and really getting a grip on what they may deal with when it comes to Jon that they may reschedule me for Thursday. No problem.....but it would have been REALLY nice if some one actually called me and confirmed it. I have called the lab 4 times this evening and was finally able to speak to some one just a few moments ago (10PM) to find out the DID reschedule me for Thursday! Gosh - would have been nice to know earlier as I now have to figure out what I am going to do for one of Jon's feeds tomorrow (his tube feedings are pre-made the night before - a bit of a process - and since he was going to be NPO for the morning - I only made two meals!). No biggee - we will figure it out :)
Keep us in your prayers for Thursday!
Always some sort of chaos at the Zoo...
~*~ Renee and the Most AMAZING Zoo Crew ~*~
Friends and Family
I would like to request prayer as the Lord leads for Jonathon and I tomorrow. We will be arriving at Children's tomorrow for an ERG/EUA for his eyes. As some of you may have noticed, Jon Jon has not been wearing his glasses - he won't! The doctor wants to see if his myopia has worsened or if there is something going on between the image he sees and the image refracted on his retina.
Any how, Jonathon's anxiety level goes out the roof when we arrive at the hospital - let alone when we try to get something done. Please pray for peace - he is becoming quite a handful when he is upset (which lately, is often) and I have a very hard time keeping him safe and calm.
Thanks in advance -
UPDATE: 3-5-08
God has heard your prayers and Kaden is feeling much, much better today. He has has some breakfast and lunch - bland and a small amount - and he has had 2 cups of his watered down juice - along with his medications and supplements - and so far it has all stayed down! He has played and ran around the house most all day. I am so thankful and will continue to believe that he is on his way to recovery from this nasty tummy virus - I can not thank you enough for standing in the gap with me :)
Renee
UPDATE: 3-3-08
Friends and Family
As the Lord leads, please keep Kaden in your prayers - my baby is STILL sick. He is not throwing up constantly - but is still throwing up. He is taking in watered down juice and is still having some wet diapers - so he has remained hydrated. It just seems like we can not get past this very nasty tummy bug. He will go from good spirits and playing to being knocked completely down and unable to do anything but lay there for hours and then of course vomiting. I just want my little monster man back.
On another note - I need God to really intervene here as there seems to be no sight in end with the boys and their "anger". They love to disagree - you know "typical" sibling rivalry - one will say up - the other will say down. In one aspect it is an excellent milestone - a great developmental, cognitive development. However, as they both have autism, it escalates in mere seconds to the point they are both screaming, crying, getting aggressive with each other and then Jon will turn his frustration on himself. He can scream MUCH louder than Kaden and it is unbearable. Jon will then start slapping at his face. Of course we do all we can to keep him from hurting himself - but he has left his face a bit bruised :( This is a big thing as we struggle with this EVERY day. I mean there are days the boys wake up (they share a room) and they start - not even out of bed and all heck has broken loose - it makes for a VERY long day and leaves us all battle weary and worn.
The boys have ALWAYS struggled with their behaviors - Jon is more self abusive (hurts himself) and Kaden is more aggressive (hurts others). I realize their are certain things that go "along" with autism, and drug exposure - but golly gee - we need a breakthrough here - please believe with me that my sweet boys would no longer be overcome with anxiety and turmoil in their minds and spirits - but that God's peace would prevail in their lives.
Thanks in advance,
~*~ Renee and the Most AMAZING Zoo Crew ~*~
UPDATE: 2-29-08
Michael, myself and the boys have apparently had some sort of stomach bug make the rounds here. I was luckily done about 24 hours - but Michael, although feeling better, says his stomach still does not feel right and it has been some time since he had the virus!
Jon Jon had several days that were quite rough - but today we are attempting full feeds (remember he is tube fed) and I am hopeful it will go well. Unfortunately when his little body gets off so do his behaviors - and the last week or two have been incredibly difficult for him (and me!) and I just need him to have some peace in his little mind.
Kaden on the other hand - seems to have got the bug the worse - he has been down for days. Good spirits, as he is always a trooper - but this is the third day he is unable to keep anything down. He is still drinking some and is showing no signs of dehydration - but we all know how quickly that can change.
Please pray that the men in my life would be well and healthy - stable and joyful - very soon. Also, that the girls will NOT have to deal with this virus.
Thanks in advance...
~*~ Renee and the Most AMAZING Zoo Crew ~*~
UPDATE: 12-24-07
A Very Merry 2007 Christmas From the Harris Household
As you all know composing our little letter is the highlight of my Christmas season as I so love reflecting on the past year and jotting little pieces of our lives on paper. Unfortunately, I did not take good notes this year and we have had a “bit more than normal chaotic” year with things getting very wild as the holiday season approached. So this year we will have to rely on my recall memory to compose this newsletter. MMM, the good news it will be short as the bad news is I cannot remember well.
~*~*~*~*~*~
For those that do not know - my daddy passed away on Nov. 1st. It was sudden and quick and caught us all off guard. I have included a little write up that I had emailed out to several friends and family members and also had printed up on the display board at the church for the receiving of friends.
At composing this letter it still seem so surreal. The thing that allows me to move on is knowing, with out a shadow of a doubt, that he is now whole and happy and with my mom in Heaven.
~*~*~*~*~*~
Well, this spring we finally took the “plunge” and purchased an 24' above ground pool. Although we had it installed, Michael spent many hours preparing the land - as we needed to make some flat space. Oh! The rolling hills of TN. The girls have thoroughly enjoyed the pool and although I was very leery about putting the boys in, they LOVE “let's go swimming - the big pool.” We hope to be able to put at least a partial deck up this spring - but if not - we will still enjoy it.
~*~*~*~*~*~
Can you believe Mikayla, my baby girl, is 16 and now a licensed driver? She got her learners permit at 15 and practiced driving in Mike's big F250! Michael was able to “fall on a deal” and purchased a 2002 Taurus earlier in the year, which quickly became “her” car. It is a mixed blessing with another driver - coming to grips that my baby is no longer a baby - but also enjoying the freedom of no longer being the chauffer!
Mikayla was nominated and elected for Sophomore representative for the Homecoming Court and is also the Student Council Secretary and Chaplin! She is doing wonderfully at school - she applies herself and works hard. We pray her diligence will be of great benefit to her in the future. Her favorite class by far is athletic training - she has put on over 20 pounds of pure muscle - she has taken great pride in caring for her body. We are glad she likes to work out and take care of herself - especially with the heart disease that runs in our family. She has also found the added strength has allowed her to be quite a contender at the flag football games she often plays (even though one game ended up with a broken finger!) Mikayla is growing in to a fine young lady - and her heart is after God. What a blessing.
Last year Rilea tried out for this years Middle School squad and she made the team! I have seen her cheer and she is so in her element - and a great “flyer” - being tiny (and solid) she is the favorite for stunts J She also joined the new middle school dance ministry at church and has enjoyed ministering to others through dance. There can never be too much activity for Rilea. She continues to struggle with academics - but is trying hard to balance her “other activities” along with the demands of her teachers. She turned 14 in August and has really grown up and matured so much this past year - she is an absolute joy to be around!
Jonathon - oh my beloved Jon! Can you believe my miracle boy is 7!!! He a lean 4 ft tall and a whopping 52 pounds! We have struggled for so long trying to get him to gain weight and he is FINALLY putting it on. As with every year - he is still struggling with outbursts and getting them under control and trying to understand the world around him. It is so hard to often put things in perspective - as his delays are not only gross but global and although he continues to move forward his progress is slow and seems to always be 1 step forward and 2 steps back.
He lost several teeth this year and we were thinking we may be singing “All I Want For Christmas is My Two Front Teeth!”. However one tooth is almost in and the other is peeking through…poor snaggletooth! He continues to depend on tube feedings, eating a few Lays chips here and there, his vision continues to deteriorate and his expressive language skills has made some progress. Although echolalia still being the primary way he “communicates” - he has made a few random and appropriate statements this year which give us hope that he will make better strides in functional language skills. In spite of much intervention, therapies, supplements, diet and the like - Jon just continues to move forward at a snails pace. Jon is Jon - he has classic autism and always will - and we have come to terms with that, and although there are days that seem so hopeless - there are also days in which God gently reminds me of the simple miracle of Jon's mere existence. I have no idea where I would be with out my Jon. He is by far by biggest challenge - but also my testimony of God's grace and mercy.
Oh no! It is mommy's monster man! Can you believe Kaden will be 4 in March! He is a HANDFUL. All boy and the epitome of the energizer bunny. My little guy is CONSTANT movement. Kaden is by no means “cured” of his Autism - but he is responding well to therapies, supplements and strict dietary changes. There are days it seems we are doing so well and then there are others that his Autism is so obvious. He is also struggling so much with continual mood swings, he no longer seems like mommy's happiest little boy - as he is constantly offended and always crying. It is even worse if he gets a food infraction….sigh. Other than that, Kaden is moving forward in development - and has long surpassed Jon in language skills, although his apraxia makes it so difficult to understand. He is making progress though and that is positive, and although he struggles so - he still is just such a blessing.
Michael quit Lance Cunningham Ford after almost 13 years and transitioned over to Dean Stallings. Closer to home and with the same team of guys he has worked for/with for years. He keeps busy with golf and around the home projects. No real big projects this year, but we are in the middle of a remodel in the playroom, pulling the bathroom out and in the process of making room for a small office! Kaden continually damages my computer so we need to move it where he cannot reach it but it still be “in” the playroom! Michael has also had some real issue with his knee and he will be having surgery in January for a torn meniscus! That should but a strain on a few things, huh?
As for me - I am doing well. Life goes on with or without you, if you have a good attitude or bad. I have to admit my attitude tends to be more negative than positive and I need to work on rectifying that. Life is what you make it, and it is full of choices. My journey is not over - and even though it has been FULL of mistakes - the most important part is the future can still be different. Where are you on your journey? I would assume I am about half over - I can't change the past - but I definitely can learn from it and I am working on the idea that the past does not have to define me - God's grace and mercy are new every day - and today is a new day.
“Happiness is a journey ... not a destination!! Work as if you have no money. Love as if you have never been hurt. Dance like no one is watching. Sing like no one is listening. And live everyday as if it were your last."
May you and yours know the true meaning of CHRISTmas now and throughout the year.
The Harris Zoo Crew
Michael, Renee, Mikayla, Rilea, Jonathon and Kaden
UPDATE: 8-29-07
Jon Jon is now 7 and getting so tall - he is right at 4 feet and skinny as a rail! He is doing some better with his behaviors and we are trying to get him more stable, as for me this is the hardest part of his Autism. He has not gained many skills since last update - but at the same time has not regressed any either. He is making VERY small strides in functional speech - able to use some of his echolalia/scripting skills more appropriately to get a want fulfilled and he has even, on occasion, made a random, appropriate statement that has either left us awestruck or in stitches - as he can be so funny :) Jon just doesn't respond to much that we try for him - supplements, diets, therapies....he has come so far, but in all honesty has still so far to go and the road ahead, unfortunately looks anything but straight and easy :(
Kaden, almost 3 1/2, has made AMAZING progress on the GFCF diet and many of his more "severe" Autism traits have all but disappeared. He is now sleeping better, attempting to speak more, making more eye contact and showing genuine interest in things around him. Now, his Autism is not cured, as if I could no longer afford his dietary changes along with the supplements - I can tell you I am sure we would be back to square one. He also still has many autistic tendencies - but I think most people would overlook them (especially since Jon's Autism is so obvious and the boys are always together). He still struggles terribly with speech - as his apraxia is so profound - but he tries so hard. He is such a smart boy, he knows all of his ABC's and their sounds and all of his shapes, colors and numbers - to 100! Although when he talks his speech resembles someone with a hearing disorder - I still think he is amazing. The doctors feel the early intervention was such a huge benefit for him and although he lags behind in many areas - he will be "ok".
Overall - my boys are doing well - God has been very, very gracious and merciful.
~*~ Renee and the AMAZING ZooCrew! ~*~
UPDATE: 5-4-07
Wow! Do you have the opportunity to see God's grace and mercy everyday? I do - when I see my son Jonathon. Can you believe that this Saturday my beloved son will turn 7!
So, you say? Children have birthdays every day. Yes, indeed they do. But Jon Jon's birthday celebration is always extra special. Jon Jon is a former 28 weeker, born at 2# 9 oz. with a HOST of medical complications due to his premature birth, and his birth mother's drug use.
Oh, I so never tire of this story, and every year I send a post similar to this, so others will believe that we serve a great and mighty God...who ALWAYS has everything under control.
Jon Jon was born 7 years ago, 3 months too soon, to a mother that did not care for him while he was in the womb, nor when he was out. Left in the hospital for three months, undergoing vast amounts of tests, procedures, and operations...all alone, as she could not care for herself, let alone a very sick baby. We were contacted when Jon Jon was still in the NICU and I met him when he was three months old....still so sick and so fragile. It would be another month before he could be discharged from the NICU and be in our home to receive, constant and steady care and love.
We were told upon discharge and in the following months, that Jonathon would probably not make it to his first year, and IF he did, he would spend his entire first year at best, in and out of the hospital because of his severe lung issues (um, he only spent 11 days total in the hospital for lung issues - his entire life!). We were also told that he would never walk, and if he did, he would need assistance.. (Um, could some one tell my son to slow down...he has mastered the rock wall and Jacob's ladder on his play fort!). There was nothing positive ever reported to us about my dear Jon, his prognosis was grim at best. I believe that Jon has and will continue to confound the medical community. I still remember the day we left one of the doctors offices...WALKING independently - and the doctor saying, "Who would have ever thought!"
These past 7 years has not been easy, Jon Jon can present many, many challenges...but at the end of the day, when all is done and said, I would not have it any other way. Jon Jon still has sooooooo far to go - but everyday he enjoys life to the fullest and finds such pleasure in the simple things. He is one amazing, strong, and determined little fella - a definite over comer - and an inspiration to all. Each day, he proves that God is merciful and loving :)
Rejoice with me as Jon celebrates another year blessed by God - Jon turns SEVEN this Saturday - Yee-Haw!
Happy Birthday, Son!
~*~ Renee & The Amazing ZooCrew ~*~
UPDATE: 3-31-07
Hey Guys...
Whew! What a morning. As usual, Jon Jon did well, for Jon! We got to and through admitting with no problems...but as soon as we walked down the hall and turned the corner, Jon started to panic. I could barely get him in the radiology waiting room. The staff (Sandy) was wonderful and they got me back right away, got Jon his shot to get him woozy and got him back to get an IV. It all took a little longer than I was happy with, but Jon was soon off to sleep, and the tests were all able to be run.
His ophthalmologist felt that Jon's intraocular pressure stabilized, both eyes were at 14, this is actually down from last exam...and he hasn't even been on medication! God is good. His vision in his only functioning eye decreased another degree, he is now at -17. We ordered him some new glasses and lenses and will hope to get them in about 10 days. We also decided it may be good to try some transition lenses ... I hope he likes them. (They come with a guaranteed that allows us to change back to regular lenses if we need to.)
His pulmonologist's office is closed this afternoon, so I believe I will hear some positive news regarding the condition of his lungs on Monday.
His cardiologist's office will get back with me on Monday. As soon as I have some news I will post and let you know. Thank you for all your prayers.
~*~ Renee and the Amazing ZooCrew
UPDATE: 3-29-07
Hey Guys-
Just wanted to send a little prayer request....
Friday, at 6:45 Jon Jon will be at Children's Hospital in the radiology department to have a CT scan of his lungs, an Echo of his heart and a re-check on his myopia and IOP (pressure in his eyes).
These are simple procedures for "typical" kids, but as many of you know, Jon Jon is not what most would consider "typical" so we were able to arrange a sedation and for all them to be done simultaneously. Usually we have all of our procedures done in the OR - but because of the CT scan, all procedures will be done in radiology.
In August Jon Jon had an eye exam under sedation in the ER and I was able to speak to the Anesthesiologist directly and she and I worked out a game plan for Jon and as I recall things went rather smoothly. It seems, though, that Radiology has their own team and they do not seem as receptive to my concerns...I just want things to go smoothly for Jon as I know EXACTLY how he reacts....and to top it off, I will have Kaden with me :)
I will keep you posted and I trust that this will go well as it has in the past.
~*~ Renee and the Amazing ZooCrew
UPDATE: 2-22-07
Jon Jon is still not well. In fact all the children are still dealing with congestion/drainage and very wet coughs, but the boys seem to be having a real time of it. Jon Jon is still running a low grade fever about 99 to about 100 (which in actuality is high for him as his base is 96 degrees).
Any how, our concern was Jon Jon's exams set for tomorrow at Children's. I was able to talk to radiology and we agreed to sedate. However, since Jon is not well, and already at risk, we had to cancel the appointment all together and reschedule. The good news is, I only have to wait till March 16th - so that is not that long of a wait!
Thank you for covering my children in your prayers. Jon and Kaden really seem to be having a time of it and I will be very happy when their little bodies line up with God's word.
UPDATE: 2-20-07
Dear Saints,
I apologize for any cross postings.
Please pray for my precious Jon Jon. As most of you know the children have been dealing with "the crud" on and off for several weeks. Each has had their share of some low points, and it has been tough. Nausea, coughing, high fevers, croup, congestion and the like has made its rounds here. Each child has had some degree of most of the symptoms. Each symptom was met with concern, prayer, and OTC medication. It seems they start to be on the mend and then have a relapse. It has been a long few weeks.
The girls did go to school today, still coughing, but seemingly feeling much better. It seems they are truly on the road to recovery - AMEN. Kaden hit some low points this week, spiking another few fevers and now struggling with a severe sinus infection and lots of drainage and coughing. Although Kaden is not well, at least his energy level seems up today, so hopefully he to is on the road to recovery. Seems like 3 of the four on making some progress.
Yes, three of the four, that leaves Jon. He has it bad right now. He can not stop coughing, has a fever of 100 - 101 (which is VERY high for him, as his baseline is 96 degrees). His secretions are VERY thick and he can not move them, we did get the okay to use some guaifenesin to try and thin them out. Until that kicks in, he is left with mucous he cannot move, so he coughs and inevitably retches (sorta like dry heaves?) for several minutes trying to move it on his own. This forces me to use the suction machine on him to get what I can out of him. He is getting very tired of me having to use the suction machine to clear him out, but at this point we have no other choice. He always concerns me when he is not well, and I feel deeply for him. You know it is sad, as he is almost seven years old and can not communicate his pain or discomfort. I often feel so helpless and I am left guessing how to address what I think his needs are.
I know it will not be long and all the kids will be healthy and happy again. But I do no really want to deal with this junk for one more day. I know I have sent several prayer requests out regarding this, and I am sorry - I am just tired of this illness and want it to end.
On another note Jon Jon is scheduled to be sedated for another eye exam on Friday. He is having some trouble with pressure in his eyes and the pressure needs to be check again. He was sedated, just this past August for the same thing. We also have a pulmonary CT scan scheduled at the same time. I have a call into radiology, as I was under the impression they were only going to make him groggy and not put him under. If this would work, it would be great, but it has NEVER worked in the past and each time they took this avenue it was a huge disaster. I need them to agree to sedate him, I need him to be well enough to have it done and I need the pressure in his eyes to stabilize. I also need peace and extra strength, as Jon Jon becomes VERY combative when we approach the hospital, his anxiety level goes through the roof, and as he gets taller and heavier and stronger, he is more and more difficult to "control". I will also have Kaden with me that day, so that should add a little spice to the mix, heh?
If the Lord leads, please pray, and especially for my Jon.
Renee
UPDATE: 2-15-07
Mikayla was feeling okay and went to school yesterday and although wiped out - she managed to hang out with us last night.
Rilea went to school also - and came home showered and I did not see her till this morning.
Both girls went to school today - and Mikayla called me to pick her up early - she now has the fever (101) and chills.
Grace Christian is closed tomorrow due to illness.
Jon Jon has finished his antibiotics and seems to be on the mend (although his nose/drainage seems to be lingering).
Kaden was doing well too - but spiked a fever of 101 yesterday afternoon and I am having a hard time controlling it - I will be more aggressive to see if we can keep it down. I took Kaden to the ENT today as the tube in his left ear has been "falling out" for some time - and I was thinking that may be the cause of the fever (ear infection). We went in today and the doctor removed a small amount of wax and the tube out of the left ear and then proceeded to remove a HUGE chunk of wax out of his right ear (GROSS!). The tube in the right ear is at best near the canal and all looked good. By the time we got home - Kaden spiked another fever. Kaden is struggling with taking fluid in PLEASE pray he will drink as the biggest fear with the flu is dehydration - and I really do NOT want to end up in the hospital.
So - Ri is still coughing, but seems better today, Kay and Kaden apparently had a relapse and Jon is doing well.
Now, my daddy just told me he vomited!
Please BELIEVE with me that this will all be gone in Jesus' name - I just want a healthy home ASAP!
Renee & The Amazing ZooCrew
UPDATE: 9-23-06
Hey Guys
I just wanted to share that Kaden received his big boy bed yesterday, and after all was said and done and I got around to getting the pics downloaded and an email sent - I realized that the "wrong" bed was in his room!!! It got a little hectic and chaotic making phone calls, looking for the original script, calling the DME, calling the SleepSafe company (www.sleepsafebed.com), yadda, yadda, yadda. But in the end, the provide SleepSafe bed sent the wrong bed and will have a new one out here next week. If you check out their web site/pics I sent you will have a better understanding, as the bed we were to receive is the SleepSafer bed in which the railings are "taller" and much safer for Kaden. I will be sure to post the new bed pics next week.
Either way Kaden LOVES his new "i - i - ed" (night-night bed). However, when he stands the rail comes up to his chest - a teeny bit scary, as it is rather easy for him to topple out. The correct bed - the SleepSafer - has railings/sides that will come up to just below
the top of his head. Sounds corny, but please pray that Kaden will not topple out of his bed and that we will get the correct bed soon.
Sorry to be so long winded...wanted to share and I also enclosed pictures of the yard with the mulch and fence!!! (and yes - that IS Jon climbing the rock wall!!!!!)
With much love,
Renee and the most amazing ZooCrew
 
UPDATE: 9-21-06
Hey Guys...
In July, Jon Jon was granted his wish from the Make-A-Wish Foundation and he is now the proud owner of a humongous play system that resides in my front yard. Several weeks later 12 yards of mulch was added to that gift and a fine couple, donated a beautiful cedar fence that was installed yesterday.
A beautiful, partly sunny day, mid 70's, dry ground and a BEAUTIFUL FENCED IN PLAY AREA!!!! Words can not express my gratitude. Once we picked up the girls from school and dropped them off at church, the boys and I headed home. As we were coming up the drive the fence man (installer) was leaving - our yard was good to go. I had prepared Jon through out the day that there would be a fence and that we would play outside later. On the way home I continued to assure him we WOULD be playing outside. When we got home - he was a little anxious over the fact that there was something blocking his entrance, but once inside the fence - they both had a BLAST. Kaden could run, run, run and that he did. Shelbie (the dog) was also enjoying herself as she could stay out side and not wonder off. We had a BLAST and I was overjoyed to be able to sit and relax and enjoy my boys....no screaming at Kaden to come back, no telling him to leave the trees alone, no chasing him all over the place. Just a place to relax and enjoy. I can not tell you how wonderful that is.
I just wanted to keep you up to date as many have asked if my fence was here yet. It is and I can not tell you how blessed we are - as soon as we get back from therapy today we will be outside!!
As a side note - today is Jon Jon's 5th Gotcha Day - 5 years ago today we finalized our adoption and he was made an official part of the family!
Blessed beyond belief,
Renee and the Amazing ZooCrew
 
Jon-Jon's New Bed New Bed Closed
UPDATE: 8-30-06
Hey Guys -
Just wanted to let you know that Jon Jon's sedated eye exam went pretty well, all things considered! We are home and he is his old cranky self! I was able to speak to the anesthesiologist yesterday and we came up with a solution that helped Jon tremendously and his eye doc was also able to call in the dilating drops which allowed me to administer them to Jon before we even set foot in the hospital.
Jon Jon's vision continues to deteriorate, he is now a -16 in his only functioning eye (left eye) and the pressure in both eyes have remained stable, high end normal, but stable. The doc wants to reexamine (and sedate) Jon in about six months to recheck his pressure as he is no longer using any medication to control the pressure.
Thanks for all your prayers, and although I am exhausted, I am none the worse for wear!
Renee
UPDATE: 8-26-06
I won't go into the whole detail how this all started, but will try to skim the top so that you will get the jist, it is really a God thing - truly amazing. The lady that introduced the NCD to me was able to convince me (somewhat) that it was so something I had to try on the boys. Yeah, Yeah, Yeah, whatever. I decided to try I, and well, I really didn't see to much difference and then (another story) I ran across a post sent to me in reference to a Doctor that is working with the NCD with his Autistic patients. What? This stuff could be "real"? I researched the info - and if you want I could share the website - and followed this doctors dosage a bit more closely....This is about to become such a testimony - not only to God's greatness, but to the product He provided that has done wonders for my boys. I began to use the NCD's much more religiously and I was amazed.....
I had systematically started taking Jon off his medications for the past several months and was down from 13 to 5. After I started the NCD I took him off the remaining meds, and with a doctor's permission, I took him off his heart medications. I want to share with you that for the first time in 6 years my son is completely med free....ah, did you get that - COMPLETELY medication free - wa hoo.
Here is what else I have noticed for Jon....although he is now having a harder time staying asleep, his behaviors are MUCH improved (we still have our moments... I mean, get a grip, he still has Autism). But I have found he is doing much, much better. Oh, I will throw in a prayer request here, as when the change of season comes Jon inevitably becomes incredibly difficult to handle....yikes....maybe not this year? My son is having no allergy symptoms, reflux or heart issues.
Okay, wait here comes more. Here is were the drops made me a believer. My little Kaden man. Man of NO words, inability to focus for any length of time, appearing deaf as there is little response when spoken to and recently diagnosed as Autistic. Oh yeah? My little man, IS using words, and sign language, stays on task at therapy sessions (over 7 hours a week), and CAN listen and respond when spoken too. (Of course, ya know, he does still have that selective hearing loss all men have! LOL) He to is no longer showing any signs of food or environmental allergies, and in more ways then one is a very "typical" 2 1/2 year old!!!!!
We are now starting Rilea, Mikayla and Michael on the drops. I just wanted to share as these are products every one can benefit from as we are bombarded with toxins every day and this is a company that is on the move and it is easy for you too to become a distributor. Let me know if I can answer any questions for you.
Renee
UPDATE: 7-08-06
Hey Guys -
Our big day has come and gone and the dust has all but settled, so I wanted to get you all out some pics and tell you about our big day.
Over all Jon Jon did very well with the commotion, although he did choose to spend a good portion of the "building" part in the house - I think it was too much noise :)
The big "Tree House" (as Jon has named it) arrived a bit after 12 and was done around 4:40. During that time, Make-A-Wish representatives were here, Rack Room representatives were here, a photographer and the news! There were Make-A-Wish t-shirts for everyone (Kaden couldn't wait to get his on), a camera, cake, lots of cold water, a check presented from Rack Room to Make-A-Wish, a goody bag for Jon with an ipod, a gift certificate for Rack Room and a football, lots of good conversation, anticipation and when it was all said and done, one very happy family :)
The "Tree House" is perfect and they were able to put it in the front yard right where I wanted it! There will be wood chips coming in the next week to give us a soft surface and a fence is being put around the play structure to keep the nasty neighborhood dogs out and the kids all safe inside!
It was a great day, with great weather and Jon Jon really did well with all that was going on. I couldn't be more blessed and ALL the children love the play set. I am still amazed at the generosity of others and want to thank everyone that was involved from the bottom of my heart. Rejoice with me again, as God shows Jon once again how truly special he is!
Enjoy the pictures........
Renee and the amazing ZooCrew....
 
 
UPDATE: 6-30-06
I just wanted to send out a general post that Jon Jon will be getting his Make-A-Wish granted next week Friday. His wish is being provided by Rack Room Shoes and next week Friday, Jon Jon will be getting a Rainbow King Kong Edition (HUGE!) Play Set. Rack Room shoes will provide the "excitement" on Friday and sometime within the next week we will get the play set fenced in, also provided by Make-A-Wish and Rack Room Shoes. (We couldn't do it all in one day as it was just too much).
If you would, please pray that Jon will be able to handle all the commotion of the day...I can never be to sure how he will handle situations. Also, believe with me, for a double portion for all those that have been involved in making this wonderful event come true for my miracle boy....
Rejoice with Jon and our family as Jon, I will keep you all posted on the big day and will definitely send out updates and pictures!!
Basking in His Grace,
Renee
UPDATE: 5-19-06
Hey Y'all -
I just wanted to update you/inform you all on Jon Jon's Make-A-Wish.
Just a recap - I apply some time ago to see if Jon Jon was eligible for a wish and I did not hear anything back for some time and figured he was not eligible and let it go at that. Then out of no where I get a call and they want to come and do his interview. We had our interview at the end of February and originally wished for a Disney Cruise. However, the more I thought about it the more I realized that this would not be the very best wish for Jon. After a lot of phone calls and some new paper work - it was decided that Jon would get a play set for the front yard and that it would be fenced in to keep Kaden in, and the nasty neighborhood dogs out.
Okay, fast forward - we are in the process of finalizing the details for Jon Jon's wish. Rack Room shoes of Knoxville is sponsoring Jon Jon's whole wish and Funmaker's will be providing the play yard. I am not sure who is doing the fence, but I am to meet with him soon. Rack Room shoes wants to throw Jon a party at one of their stores and (I quote) they want to make it a "BIG event". Wow ! we are so excited. Jon Jon loves to "play yard outside swing slide okay please" (his exact words). He is going to be sooooo thrilled when he gets to go out front to play and not have to navigate our hilly hard to get to the back to play (we have a fort that Michael built YEARS ago in the backyard that is neither safe nor provides anything for Jon.)
I will keep you posted as things start rolling along. I am just so excited for Jon, for all the children really - as this will bless them all!
I just wanted to get you up to speed. It really should not be much longer now.
Rejoicing,
Renee
UPDATE: 5-4-06
Okay, I know some of you that have been in my e-mail address book will eventually tire of this - but I just can not help myself. Every year, for Jon's birthday I post something along the lines of the following post - I can not believe that my little boy will be 6 years old this Friday!
Six years ago, a drug addicted, premature boy was born - weighing in at 2# 9 oz., he arrived in the world 3 months too soon. Given a host of medical intervention to keep him alive and then stable, his birth mom was no where to be found - she abandoned him in the hospital. Jon was soon placed in the States care and we were contacted when he was only 3 months old. Still in the NICU - Jon was given a very grim prognosis - they were not even sure he would make it to his first birthday.
After much prayer and lots of visits to learn to care for him - we knew Jon was going to be part of our family, when he was 4 months old he was stable enough to come home - with quite a bit of equipment I might add.
These past 6 years, Jon Jon has continued to amaze the medical community with his milestones and ability to over come. He wasn't supposed to make it to his first birthday without being in and out of the hospital, as his lungs were so bad (he was only in the hospital about 11 days for his lungs during the first year). He was never supposed to walk, and if he did it would not be without assistance, need a wheel chair for endurance, never have much "upstairs" and be completely blind.
Well, Jon Jon is blind in one eye with low vision in the other - but he can find a piece of rice on my beige carpet! As far as his inability to walk is concerned, um, Jon Jon runs,jumps and climbs with no problem. Although he is quite developmentally delayed, he progresses every day and has mastered writing his name (Jon) and can name objects in English, Spanish, American Sign Language and even some Japanese!!
Jon Jon, is no way a typical six year old (see my signature tag), but he has come so far and continues to move forward in spite of the challenges he faces every day.
Rejoice with me as we celebrate the gift of another year of life - Jon Jon will be 6 this Friday!!
Happy Birthday Son...Love, Mom
Renee
UPDATE: 5-2-06
Hey Y'All -
Just wanted to let you know that in the past 28 hours Kaden has been symptom free other than a very small loose diaper! I am sooooo glad he is better and thank you all for your prayers - it has been a long 10 days. He is as miserable as ever today - but he has taken in a good amount of food and drink and has kept it all in his little belly. I will be so glad to resume our daily grind this week!
Renee
UPDATE: 4-29-06
Hey Guys,
Last week Friday Kaden became sick and was vomiting on and off most of the evening - through out the week he has gone back and forth between vomit and diarrhea.
Some days he does really well and some he does not - he goes from vomiting all day and unable to keep anything down to having 7-9 loose diapers within in an hour, to doing well all day and then all heck breaks loose in the wee hours of the morning.
He has slept through the night once or maybe twice this past week. He manages now, to be stable during the day and I am able to keep him hydrated - but he still is having a hard time with this virus. His little bottom is raw and he ended up vomiting on and off the past two evenings. Every time I think he is on the mend - he throws me for a loop and starts back up with the vomit and diarrhea.
Please pray that his little tummy would settle and that this virus would be gone. The lack of sleep is getting the best of us all and the virus is starting to wear Kaden down.
Thank you in advance.
Renee
UPDATE: 4-24-06
Please lift Kaden up to the Lord as He leads. He was not well the past few nights, vomiting a bit - but always better during the day, though low key. Well today he has taken a turn for the worse as he can not keep anything down and has had several very loose stools. He had something similar to this in November and it took weeks before he was better.
Please believe with me that his tiny little body would be healed in Jesus name.
Renee
UPDATE: 4-14-06
Hey guys -
Just wanted to send out an update. Several months ago - I applied for a Make-a-wish for Jon - and when I did not hear anything back - I just assumed he did not qualify - which was fine. Then a month or so ago I, out of the blue I received a call that they would be coming out to interview and meet us for Jon's Make-a-wish!!
We originally wished for a Disney Cruise as we thought it would be something everyone could be blessed with. However, the more I thought about it the more overwhelmed I became as I am never really sure how Jon will do away from home - and if he did not do well on the trip - oh, what a disaster. So we asked if we could "change our wish" and we requested a fenced in play yard for Jon.
It took a bit to get the paperwork all re-done and they just contacted me today to let me know that they are working on some quotes and would be in contact with me very soon. I am very excited as this will be such a blessing. Jon asks to "play yard please okay" all the time - and Kaden LOVES to be outside. The trouble I have is there is not much for the boys to do outside and once outside, Jon takes a long time to navigate the yard, while Kaden has explored the whole 5 acres in a matter of seconds...it is impossible to keep them both safe.
I will keep you posted as I receive the details - I am just so excited!
Amazingly blessed,
Renee
UPDATE: 2-26-06
Hey Guys -
We had our Make-A-Wish interview today. It was a long meeting with good conversation and lots of paper work.
We had NO IDEA what to wish for as Jon Jon has no needs - we always get him what we think would benefit him, and that left little to "wish" for. When Jon was asked what he wanted for a wish present he could only repeat "wish present" and then added "red"!
Two request are needed in case they can not provide the first. We asked for a Disney Cruise or a Disney World Vacation at Give Kids the World. The cruise would be something we would not do - and a once in a lifetime opportunity, We also felt that this would not only bless Jon - but also the girls. Realizing of course that the wish is specifically to be for Jon - but we wanted to be sure everyone would benefit if possible. With a cruise, if Jon got overwhelmed - we could simply go to our cabin and chill. With the Disney Vacation at Give Kids the World we would also benefit everyone. GKTW is specifically designed to accommodate special needs children and I am sure we would have a blast.
I hope that I do not offend any one with our request - as I do not want to sound selfish - and I am afraid that some may see it as that. Jon Jon can not verbalize a desire or need - and as I already stated we give him all that we believe he needs/wants. I also know there are many more children that are much more "needy" then him. Like I said in my original post - I simply applied and when nothing happened - I figured we did not qualify. Then I get a call, months later. I know we are blessed and I am thankful my God knows how to love His children.
We made our request, so I believe it is up to Make-A-Wish to see if they can accommodate that request. I will keep you all posted.
In Him,
Renee and the Zoocrew
UPDATE: 2-23-06
I can not believe it!
Several months ago I had applied for a wish with the Make-A-Wish Foundation. They normally grant wishes to terminally ill children. It was suggested to me when Jon was much younger to apply and I never did. I figured I would give it a shot as all they could do was say no. I applied, oh, at least 6 months or so ago and never heard back and left it at that.
This evening I was contacted and Jon Jon will be interviewed on the 25th. I am just so blessed. I will keep you posted on how it all goes.
In Him,
Renee
UPDATE: 1-23-06
Hey Guys -
Just wanted to send a general update out to keep you up to snuff on the happenings around here.
Kaden was recently screened for Autism and he failed the screening. Since he is still part of our early intervention program here - they have suggested a full psychological evaluation. As I already have Jon - a full spectrum Autistic, I can assure you, that at best Kaden would be high functioning, or more of a Autistic tendency type diagnosis. His Dyspraxia or very possible mental retardation could very well mask itself as Autism.
On another note, Kaden has fluid behind both ears and his 2nd year molars are coming in - he is ABSOLUTELY miserable! Poor fellow.
Jon Jon is doing quite well and has been in rather good spirits these past few days!
Grace Christian Academy, the school the girls applied for, had an open house the other night. We went, enjoyed the presentation and meeting many of the staff members. We were a bit confused as to how to enroll for next year as we technically already enrolled and
had our interview. We were told to speak the principal as to how to go about that. When we did we were greeted with some wonderful news. She informed us that we should be getting a call this week, as she is sure she has an opening for each of the girls - WOW. My girls and I were so excited we could barely contain ourselves! We know this will be a huge adjustment for them - but are encouraged, as we know this is the right thing for our family right now. I will be relieved of the pressure of trying to teach them and maintain the rest of the needs of all the "boys" in this house (Jon, Kaden and my dad) and the girls will receive better instruction and less distraction at the academy. Mikayla will continue with 8th grade and we decided to start Rilea in 5th instead of 6th, which is what she is doing now. I know Rilea will understand the academics, I am just not sure she will be able to keep up with the work load or the pace. She has mixed feelings, she knows I am right, but her self esteem took a major blow :(
Michael has been suffering from his cluster migraines again - and this time it is very bad as they are happening more and more frequently. Just this week he had an episode 5 days in a row. These migraines come with debilitating pain that causes his whole body to be soar when they finally are gone. We have tried some different meds - but only one work so far - and we are not sure if we can get more than 2 doses per month. Michael can suffer for hours with this pain without the meds. We will be calling the doctor in the morning and see if he cannot do more test or find a better solution. After these episodes, Michael is physically wiped out for a day.
Daddy is hangin in there - he is still wheelchair bound - but we are in the process of getting a prosthetic leg for him. It will be a tedious process and it will be a minimum of 3 months before he will be able to master the stairs to be able to go to his train room. His remaining leg does well - it is a wait and see game with it. The circulation continues to be poor, but the pain is bearable for now.
Me - I continue with a smile and keep hangin on to the fact that this too shall pass!!
Renee
UPDATE: 12-22-05
Please lift Kaden to the Lord, as He leads.
As a re-cap, Kaden had old tubes removed, new ones put in and his adenoids removed last Wednesday. On Thursday he awoke to a cold, and since he was on antibiotics as a precautionary from the surgery - I really didn't think much of it. By Friday, Kaden was much worse, so I added all of our regular prescription medications to help alleviate his cough, congestion and runny nose.
Unfortunately, with all I was doing, Kaden has continued to get worse, not better! He has not slept through the night since last Tuesday. He is literally waking every hour, coughing and gagging.
I took him to the doctor today and they put him on a stronger antibiotic and an antihistamine/decongestant with hydocodone in it. I gave Kaden two doses of his cough medication today and I pray that it allows him to get some rest. He is very tired, very whiney and so sick. As you may recall, a week before he had his surgery his was beginning to recover from the stomach virus - that for him lasted over a week and he lost three pounds. I just don't think his little body has had a chance to fully recuperate and he just having such a hard time.
Please pray for him, that he would be back to his ole wild man self soon -
Renee
UPDATE: 12-16-05
Please lift Kaden up as the Lord leads. He had old tubes removed and new tubes put in and adenoids taken out on Wednesday. He had a rough time after surgery - but had a great day and we thought he was doing great - recovering quickly just as we believed.
Unfortunately, he is having a real rough time of it. He is not sleeping well, and is struggling on and off throughout out the day. It probably doesn't help that he has managed to really bonk his head at least 4 separate times since Wednesday morning!. I know he is uncomfortable, as his throat is sore, but good golly can he be miserable. Please pray for peace and a quicker recovery...and if I might, that he would stop whining.
In advance, thanks for your prayers...
Renee
UPDATE: 12-15-05
Hey Guys,
Just wanted to thank you all for your prayers, over all Kaden did very well. The anesthesiologist was concerned because Kaden has severe reflux and that puts a child at great risk when it comes to the anesthesia. All went well though and Kaden's old tubes were removed (and very filled with wax), new ones were put in and his adenoids were removed. His right ear - the one he tends to have the most difficulty with, did get a bit scratched in the process - but there was nothing to be concerned about. Dr. R put him on some antibiotics as a precautionary - and Kaden should be fine.
The first two hours after surgery were very rough for Kaden, he was extremely upset and we could not calm him down, even after two doses of pain meds - and he wouldn't take a drink of his juice. We finally got him settled down - and then they took his I.V. out and he lost it again - poor fellow.
Once we got home, he drank his juice, had a good lunch and rested some and then he was back to his usual wild man self. He was just a babbling up a storm this evening (wonder if it was because he could hear himself????).
Any how - he is doing fine and I again thank you for your prayers.
On a side note - Jon Jon saw his pulmonologist today and they were very impressed with his good health. Jon Jon has managed to stay out of the ER/hospital for over 2 years regarding breathing/lung issues. He also has not taken his steroids in over 3 years and only uses his inhaler once in a blue moon. I am sure after this winter, we will be able to loose the "chronic lung disease" diagnosis. Way to go Jon Jon!!
Thanks again for all your prayers.....
Renee
UPDATE: 12-13-05
Hey Guys,
Kaden is scheduled to be at the Cheyenne Center in Oak Ridge at 7 in the morning (Wednesday morning), to have his tubes removed, new ear tubes put in, and adenoids removed.
This is a "simple" procedure, but as with all surgeries, risks and complications are possible.
Please believe with me that the surgeon's hands will be guided and that Kaden will not suffer from any complications and that he will recover quickly......
With much love,
Renee
UPDATE: 12-8-05
Hey Guys -
Just wanted to let you know that Kaden is doing MUCH better. He had a little bit of an appetite yesterday and had a "good" day - being much more active than he had in the past week - and managing to keep all his food in throughout the day and evening. I actually did not give him any of his "anti-nausea/vomiting" meds - as I though they may be the reason his tummy was so upset.
As I said - we made it through the night without a vomiting incident - although he had a rough time sleeping. Today - he is his ole' wild man self - eating constantly and running around being a terror! He is still real clingy (who could resist those big brown eyes of his!), but he is doing 100% better.
I want to thank you all for your prayers!!! I am so glad to have my Kaden back!
On another note - Jon Jon has a terrible bumpy red rash all over his body - it looks awful and rather painful. He of course has not said a word one and doesn't identify discomfort like you and I may. I am not sure what it is and would really like to avoid the doctors office if at all possible!!
Also - Daddy had his visit home yesterday and he passed his assessment with flying colors. The therapist team was so impressed with how the house was laid out (when we built it, we kept in mind that some one may be in a wheel chair sooner or later and we have wide hallways, doorways, hardwood floors/Berber carpet and open spaces). They suggested the modifications daddy needs (ramps, grab bars). They think Daddy should be home Tuesday - but I will know for sure later this week. One of the biggest obstacles daddy will face is managing to get downstairs to his train room. Daddy lives for his trains. At present there is no safe way to get him down there and really, once down there, there is little space to manipulate a wheelchair.
Well that's us in a nutshell!
In Him,
Renee
UPDATE: 12-6-05
Family and Friends-
Please lift Kaden to the Lord - he is still so sick. We were at the ER on Wednesday - and then to the doctors Thursday, Friday and today. He does fair during the day - not vomiting - but still has some diarrhea. But the past three night he has woken up vomiting between 12 and 2:30 in the morning. This has been so traumatic for him - especially the night time episodes - he is awoken from a sound sleep - and the vomiting episodes are quite violent. Don't forget to add the rig-a-ma-row that goes along with that, getting a bath, and then getting the bed stripped and clean sheets put on.
Kaden is still hydrated - but taking in VERY little through out the day - and it seems what little he does take in, comes right back up in the evening. The doctor gave us a script for more anti-vomiting meds and we used them this evening hoping that Kaden would sleep through the night. Unfortunately - we just got him back to bed as he had another nasty episode of vomiting - this time with diarrhea. (sorry to be so graphic - but my little boy is REALLY sick).
So far Kaden has lost 3 pounds - and he has been sick for one week now - he really needs to be healed - this is taking a toll on him - as well as the rest of the family. His surgery for new p.e. tubes and for his adenoids to be removed has been rescheduled from this Wednesday till next - I am believing Kaden will be well enough to have this surgery and that he will be feeling his ole' rotten, wild-man self SOON.
Thanks in advance - Kaden and I, as well as the rest of the crew covet your prayers....
Renee
UPDATE: 12-3-05
Hey Family and Friends -
Another, almost daily, update is due - LOL
Please continue to pray for Kaden, it is only by the grace of God that he is not in the hospital and is managing to stay hydrated. He was in the hospital ER on Wednesday for dehydration and I thought he was doing better. We went to the doctors on Thursday for another round of Rocephin shots and again of Friday. Kaden's diarrhea has subsided for the most part, but he is still vomiting and having a very difficult time keeping food in. He is still sleeping after a very rough night - so I will have to make a decision this morning as to if he will need another emergency room visit or not. He is still very lethargic and is very pitiful.
As for Jon Jon and I - we are doing much better - Jon Jon's cold is completely gone and he is his wonderful pill bug self! I still have some drainage - but I am doing fine. Rilea and Michael now have the drainage thing going on!
I saw Daddy yesterday, and he is looking WONDERFUL. His pain is under control and he is working well in all his therapies. The therapists from Patricia Neal and Daddy should be here for a "visit" Tuesday or Wednesday afternoon. They will access Daddy's abilities in the house, see how the house is laid out, make recommendations for modifications and then see what areas they will need to work on with Daddy so he can "live" independently.
That's our news in a nutshell...It has been a rough couple of weeks, and I have appreciated all your prayers and concern. We are managing - and at best take one day at a time.
In His Love,
Renee
UPDATE: 12-01-05
Family and Friends -
We are finally home. Kaden was dehydrated, so they gave him some I.V.'s for his dehydration, some Zofran for his vomiting and diarrhea and some Rochephin for his ear infection. They were having a hard time controlling his fever and he ended up having a suppository before we were released. Kaden managed to drink some juice and nibble on a few goldfish, and was able to keep that down - so we were free to go. We are to follow up with our pediatrician tomorrow to see if we should continue more antibiotics or to see what course of action is needed.
Kaden is still very sick - he is rather lethargic and hasn't anything since this afternoon and is showing no interest. He must stay hydrated or we will end up back in the ER.
On another note - I did get a chance to run up and see Daddy - since I was at the ER with Kaden at the hospital right across the street - it would have been silly not to run up there to see him.
He looks awful, he is in a lot of pain and unable to participate in most therapies. He also tried shaving with the hospital razor and it looks like some one weed-wacked his face (LOL).
Any way - the report today, for daddy, was not good. Please keep him in your prayers, he is really struggling with the pain he is in.
With much love,
Renee
UPDATE: 11-30-05
Are you tired of hearing from me yet?
Please keep little Kaden in your prayers, he is very sick. He coughed all night long and then woke at 5 AM just as miserable as could be. He ended up crying for over an hour and then ended up vomiting and had a fever of 101 with diarrhea. - He was absolutely miserable. Of course, it seems, everyone's kids are sick - so no one can see us till tomorrow. One doctor did call in some antibiotics, which so far Kaden has not been able to keep down. He has had but 1/2 cup of soy milk, a cup of juice, a half a yogurt and I think 2 graham sticks. I know he is feeling miserable.
Jon Jon seems to be on the mend - he was able to keep all his feeds down, and in spite a runny nose, his cough sounds much better and it is less frequent.
I, on the other hand, must have the worlds worse sinus infection - my head feels like it is going to explode and my face feels like it has been blown up - it is sore and tender and I look awful....
Because of all that has gone on here today, I did not get to see my daddy. I did call him and he is in a lot of pain - he seems disoriented - and was concerned about his brush and razor - things he needs to me to bring to the center. I am praying I will be able to do that tomorrow - but will have to play it by ear with us all not being well. Apparently his bandage was wrapped too tight and his leg is very sore. They gave him some pain meds and were going to wait for them to take effect and then re-wrap his leg.
I will keep you posted - and as usual - I covet your prayers - we are pretty battle weary here and could use a few saints to hold our hands up!
With much love ...
Renee
No. 2
Dear Saints -
I never like when my little ones are sick - who does.
Kaden is really struggling - he can not keep anything down and has diarrhea. He has a low grade fever that has gone as high as 101 - I can't keep it regulated as he throws up the Tylenol/Motrin every time I give it to him. He had a really rough time last night and did not get much sleep. He awoke this morning vomiting and once I was able to bathe him - I realized that there was a LOT of drainage coming from his right ear.
I feel the best place to take him today is the emergency room. We are waiting for his blanket to dry and we will be headed out the door. I will keep you posted and as usual - I covet your prayers....
On a side note - I checked in with daddy's nurse and daddy is not doing very well - he is in a lot of pain and they have now schedule pain medication for him, instead of waiting for him to ask. I have no idea when I will be able to go see daddy - please keep in in your prayers.
Renee
UPDATE: 11-28-05
Family and Friends -
I wanted to let you know that Daddy has been discharged fro Park West and is now "residing" at Patricia Neal at Fort Sanders - he is in room 482 - I believe he is bed A. It was a rough drive over in the ambulance and he is no longer on a morphine drip - he is in quite a bit of pain. Apparently someone bumped his amputated leg today and he is extremely sore. They are trying to manage his pain with oral meds. I am not sure how long Daddy will be there - but for a minimum of 2 weeks - I will hopefully know more tomorrow.
Please continue to pray for our family - as Jon Jon still has a terrible upper respiratory/sinus infection as do I - and poor Kaden has another double ear infection and upper respiratory infection. Kaden has had some major issues with his ears and the tubes that were put in in October of '04 haven't seemed to give him much relief. Both of his ears are filled with fluid again so he is set to have new tubes put in and his adenoids taken out on Wednesday, the 7th of December.
We are completely worn out here and would covet all your prayers....
In His love,
Renee
UPDATE: 11-23-05
Friends and Family-
It has been a long day. I left the house a bit after 9 with Daddy, he had a very difficult time this morning and getting in the car was painful for him - both physically and emotionally.
All went well when we got to the hospital - all testing was normal and surgery was done. About 1:30, Daddy was taken down and with in one hour his leg was amputated and the surgery was done. All went well and he lost very little blood.
It was a long day - and I was thankful for my dear, best friend, Janet, she was able to spend time with me and this is after she spent the morning at UT with her daddy who also had surgery - what would we do with out our best friends.
Also - my sister was here yesterday and this morning - she cooked my potatoes and baked mac and cheese, and prepared my cucumber salad today so that I would have that ready for tomorrow.
Any how - although Jon Jon is still very sick and having a very difficult time keeping anything down - Michael did well with all 4 of the children :)
Daddy was in good spirits all things considered before I left the hospital and I will check in on him (through the nurses) through out the night and I will be there tomorrow. The doctor suspects Daddy will be in the hospital for at least 4 days and we are really not sure what we are doing from there.
Daddy's brother, his wife and daddy's sister will be here Saturday and are planning to stay till Tuesday.
I will keep you posted on daddy's progress and apologize if this makes not sense - I am VERY tired, my boys are VERY whiney and I think we all need to go to bed :)
Coveting your prayers in the days ahead....
Renee
UPDATE: 11-22-05
Friends and Family -
Jon Jon is still sick - I am pretty sure he has Rotavirus - you know it is a smell you will NEVER forget (and unfortunately, we have had the "pleasure" of dealing with it several times). He is able to tolerate his feeds a teeny bit better - but still vomited this morning and had a BIG blowout today and then vomited just as I was getting him to bed.
He is so pitiful - he couldn't even help me dress him this morning and he has pretty much spent the entire day in his bean bag chair.
The worst part is he smells awful - he just smells like that rotavirus smell - poor fellow.....
Please pray that he will get better soon and that no one else will get this - if it is rotavirus - it is VERY contagious (we ARE being extra vigilant with hand washings and once the boys are in bed, we spray everything with Lysol).
With much love,
Renee
UPDATE: 11-21-05
Family and Friends -
Pleas lift Jon Jon up to the Lord as He leads. Jon Jon has actually become worse since yesterday - He is now not tolerating any of his feeds, and can not even keep down water/pedialyte. He is very low key and is running a low grade fever. He is just pitiful. Kaden is his usual, wild-man self, so his double ear infections must be clearing up.
Daddy is also in need of prayer as he is in excruciating pain - he hasn't even been able to leave his chair today and his leg is very swollen. He is even more pitiful than Jon.
If it is not asking much - would you also pray for me - I am very overwhelmed with all that is going on and although I am aware that God is in control and He wouldn't give me more than I could handle - I sure wish He did not trust me so must :)
With much love,
Renee
Previous Update:
As if though there is not enough going on Little Jon is now not well. He has been coughing on and off today, ended up retching and vomiting 3 times and then had a terrible blow-out! He has been asleep since 6:00 and his poor little heart is racing.
Please agree with me that this will be it and that he will be healthy and feeling better when he wakes up.
Jon Jon has been very low key all day - so I knew something was not right.
UPDATE: 10-26-05
In my excitement I forgot another VERY amazing thing Jon can do - he can print his name! Pretty amazing for a little fellow that is blind in his right eye, has low vision in his left eye (-14!) and nystagmus! I have included an attachment of his handy work to view!
God is so good.
Renee
Okay - I will stop after today - at least for awhile - but besides recognizing what "d-a-d-d-y", "m-o-m-m-y",
"b-a-b-y", "J-o-n", "c-a-t" and "d-o-g" spell, and besides being able to write his name, eating 'Nutter Butters,
telling me "how" to spell Jon, singing his ABC's and recognizing every letter of the alphabet.....we are also doing a 24 - 26 piece puzzle, unassisted!
As if that was not enough Jon Jon is starting to make some colorations between what he hears and what it really means. For example the other day Michael was carrying Kaden up the stairs for bath, Jon and I were already in the bathroom getting him ready to get in - and Jon said "De you here dat baby Kaned cying." Also he is wanting to "know" more things; "looking" at a picture the other day he pointed to an animal he did not know and asked "What's dat?" He also is becoming quiet fluent in naming objects in both English and Spanish, as well as American Sign Language.
Now - is that a testament to God's grace and mercy or what?! Pretty good for a little fellow whom we were told would never really have anything "up there"! And even more amazing when you consider the fact that he has no functional vision in his right eye, severe myopia in his left eye (a -14) and nystagmus!!! Sorry to be redundant to those who have received the first few emails - but I can not help but brag on God's goodness! (and for those of you who did not get the prior attachment - I have attached a "sample" of Jon's name that he wrote on his magna doodle)
Just doin a little jig and asking you to rejoice with me....
Renee
UPDATE: 10-24-05
Hey - it is in the small and mighty that we often rejoice.
I thought I would share that Jon Jon has been working hard and can now make a cross, a rectangle, circle, and write his name!!!!!!! He also recognizes what b-a-b-y, m-o-m-m-y, d-a-d-d-y, J-o-n, c-a-t- and d-o-g spell!!!
He also continues to enjoying EATING his 'Nutter Butter cookies - he has about three or four of these a day - now these are teeny cookies - but he has bitten and then "sucked" on them until they dissolve.
Rejoice with me in the monumental milestones in little Jon's life!
Renee
UPDATE: 10-17-05
Just wanting to keep you all updated on my family...
Jon Jon continues to struggle daily with his behaviors. He gets easily irritated when things do not go his way and will scream his bloody head off and often will become self abusive, by throwing himself down and hitting and scratching at his face and body. I am really at my wits end as I have no idea how to get him to stop this...the abuse is one thing but that screaming REALLY hurts everyone's ears. Jon Jon has also decided sleep is optional. It is a common thread, sleep issues, in autistic children. But this is one area I thought we had licked as Jon Jon always went to bed well and slept well. He is now fighting us and once in his bed will scream and kick the walls - sometimes on and off for an hour or two.
Other than the extreme behavior issues we are now , or again, dealing with Jon Jon is doing well. He has now master making a (lopsided) circle and today was able to draw a square and a cross. These were things his doctor requested he work on and now he is making progress. He still depends on his g-tube for all nutrition , but will lick a chip or a cookie....hasn't ate a cookie since that day in the restaurant.
AS for my little Kaden man. Nineteen months and NO words - he is babbling a bit more - lots of "gaga,gogogo" and some "bay, bee" but not a whole lot of anything else. It is in speaking that his dyspraxia is very prevalent. He tries sooooo hard to say "bubbles" - he might get "ba" out - and then his little mouth contorts all over - but no other sounds come out. His reflux is awful and at this point he is the worlds pickiest eater - we see his GI doc later in the week - I will let you know what she says.
Rilea is still struggling with her ADHD - she is currently on no medication - and it has been very hard on her. Her schoolwork can take her 12 and 13 hours to do as she looses focus so easily. There are days we are not sure if we are dealing with ADHD or complete defiance.
Well I just wanted to get you updated....
Renee
UPDATE: 10-7-05
I just want to share some good news. As most of you may know - Jon Jon is still g-tube dependant - he takes nothing by mouth. As of late he has shown more interest in "chips and cookies" - enjoying, as he has in the past, licking the chips and licking the cookies. No big deal - we have been at this point before.
Okay - I also need to let you know that Jon Jon hasn't really been at a restaurant since he has been in his baby seat. He also visited Golden Coral twice earlier this year as we were on vacation - these two visits were not very productive - yet he managed to hold it together quite well.
Okay - all that to get to this point. In the past two weeks we have taken him to a local restaurant and he has done fabulous. At first the smell was overwhelming - but he did well sitting in the booth and did lick some of Kaden's 'Nutter Butters (peanut butter cookies). Jon Jon liked being at the restaurant so well - he actually did not want to leave!
Any how - today when we were at the restaurant - we gave him his usual few Nutter Butters and as we were eating, we realized one of the cookies were gone - I asked the girls if they knew where the cookie was? Did he drop it, or what? We could not find it - one of the girls joked that he must of ate it. Yeah right. Well, we gave him another cookie - and lo and behold - he ate it! Well, he sucked on it and it dissolve, but he did not gag, or freak-out!!! - He did that for a total of 4 cookies!!!! Can you believe it?
I am rejoicing in this major milestone for Jon and pray that he will continue to make progress in this area!
With much excitement -
Renee
UPDATE: 9-13-05
Kaden is trying to get over some acute bronchitis and sinusitis. I am afraid that he has another ear infection as he keeps jamming his fingers in his ears. I am not wondering if it is time to take the tubes out and get new ones in, or what the deal is. Every time we go to the docs, they tell me one is plugged and the other is ready to fall out, it just hasn't!
Mr. Jon had sinusitis last week and was seemingly doing much better, but today had a fever of 102 this morning with several loose stools. I gave him Advil and Tylenol and his fever is better - I will keep a close eye on him this evening and in the morning to see if he needs to go back into the docs.
Other than that we have been hanging in there and doing the best that we can....
Much love and prayers,
Renee
UPDATE: 8-16-05
Praying Friends and Family -
Please continue to lift me up in prayer as I am STILL struggling with this pneumonia - I have been sick for the past 16 days and I am completely worn out. I have cancelled all my appointments for the past 16 days - but have not done that for this week - I have several appointments I must keep - plus our co-op starts tomorrow! I have only done Sunday morning services and it takes all I have to get everyone in and out of church. I am "resting" when I can - only doing the very minimal each day - but I do not feel like I am getting much better. I am thankful I do not have the fever/chills and the sever migraine. However I am still struggling with the cough, drainage, headache, little to no energy and the feeling that I can not breathe. I have called the docs today and I have an appointment for next Monday - but I can call each day to see if they have cancellations. They think they will do another chest x-ray and give me another shot of antibiotics.
I do not handle being sick well - I am always rather healthy - and I am really struggling. I apologize if I sound whiney - I just want to be better and get on with what I need to be doing.
Thank you for agreeing with me for an immediate recovery!
One very tired mommy....
Renee
UPDATE: 8-7-05
Praying Friends-
I want to thank you all for your prayers as I am feeling MUCH better. Although I still have pneumonia - I no longer have a migraine and for the most part my fever is gone. I was at the doctors Thursday and Friday and both days I got a shot of Rocephrin. I am to go back at the end of the month for another chest x-ray.
Monday, Tuesday and Wednesday was a big blur, but by Thursday afternoon I was much better. Since Friday morning it has been business as usual around here. Motherhood and the like does not stop. I have been going as full bore as I can since Friday - as the girls will tell you I AM supermom! (lol)
Again - thanks for all your prayers!
Renee
UPDATE: 8-4-05
Hello my praying friends
I was able to go to the doctor this morning and it was a good thing I did - I have pneumonia in my right lobe. I got a breathing treatment, and a shot at the docs and he gave me a script for an inhaler, expectorant, antibiotics and a suppressant for the night. I need to go back tomorrow for a recheck.
Michael was able to come home yesterday and he is here today. I am struggling, as I do NOT get sick and I am sure this is the sickest I have ever been. I have gone from severe sweating to freezing cold and I couldn't even begin to tell you the excruciating headaches I have had.
Please pray as the Lord leads - I want to feel better soon - I hate the headaches as they are so painful and the sweats are gross. I covet your prayers and also ask that you continue to pray protection over my family.
The doctor said it was a very good thing I came in when I did.
Renee ~ One very tired and sick mommy
UPDATE: 8-3-05
Please lift me up as the Lord leads. I, unfortunately am not feeling very well. I have a fever of 102 with extreme hot flashes and then extreme chills. I have a dry, unproductive cough that does not help the severe headache that I have. My body aches all over - I have had issues with my tummy and have frequented the bathroom. I have not felt well since Saturday night and it has progressively became worse. I finally called the doctor today and he doesn't have an appointment till Friday AM - but I can go to the walk in clinic. I may choose to do that today - but will have to see what time my husband can get home.
I have been taking care of the boys all this time - so I ask that you pray for a hedge of protection around them. Mikayla had pneumonia in June/July and Jon just got over some pretty sever bronchitis. Kaden is just getting over an ear infection from you know where that has included disgusting drainage.
I am tired, worn out and just want to go to bed.
As always, I will appreciate your prayers.
Renee
UPDATE: 7-29-05
Just wanted to let you know that Jon Jon is STILL battling his bronchitis - he has been sick for almost 2 weeks now. He is doing much better and actually did not vomit today - this is a good thing (for everyone involved!). He is still coughing and gets short of breath quickly. I took him into the docs yesterday and he is improving, it is all in the left lobe now. We will continue with the antibiotics and go from there.
Actually I took all of the kids to the doctors and three out of the four were seen - we were there FOREVER! Kaden has been having some terrible issues with, um, elimination. One of his doctors felt it was toddler diarrhea and told me to cut back on the simple sugars, which I have, and I have seen no improvement. I asked the pediatrician to investigate more and he had some blood drawn for a full metobolical work up and hopefully we will get some sort of answers. On top of that, Kaden has an ear infection that is draining and causing him great discomfort. Dr. R gave us some drops and wrote a script for more and it seems to be helping, but the gunk coming out of his ear is just gross. At least he doesn't seem to be in too much pain.
Please keep Rilea in your prayers also - she has not had any medicine for her ADHD in over a month and it is, unfortunately very obvious. She CAN NOT concentrate or follow through with anything. As we home school, we started this Monday and it has been awful. I feel I am always yelling at her to follow through and to stay focused and I hate it. I am not sure what to do. At this time medication is not an option and that leaves me clueless as she has the most difficult time. I feel our relationship is so strained as I am always on her back about something, but if I don't it would not get done. I really need God to show me how to help her and for Him to restore our relationship.
Sorry for rambling - however, it is so therapeutic for me - lol.
Renee
UPDATE: 7-24-05
Hey Guys -
Just wanted to let you know that it is finished!! About 9 AM today - we saw the judge and finalized our adoption and Kaden became ours!! What an exciting day. Jon Jon did well, all things considered (thank God for the child's Video Now, kept him rather occupied).
I was a tad disappointed as we were told if we wanted it done at 8:30 then we could do it in the judges chambers, but the girls would not be able to come in and only one of the DCS workers. I had made the choice to do it at 8:30 as I did not think Jon could handle it. We ended up going in to the court room - and the girls were left in the hallway with one of the workers. In the court room, we sat for quite some time. We finally got called back, and my girls could have very well been back there with us!!! It is not the first time we adopted, so the girls didn't miss much - but it was so disappointing.
After the adoption I took all the kids to Build-A-Bear and Kaden got a bear with his birth name and the girls got some things. We stopped at Stride Rite to get Jon new sneakers and then to Helzberg's to drop off a bracelet that need to be fixed. We had lunch and got cookies and then we were home. It has been a long day and other that this morning, we have all worked non stop to get some much needed things done at home. It is close to bedtime for my boys and then I am off to pick up my daughter and then to back home to get more chores done.
I am glad that we are finally to this point. It is a great place to be. We have fostered for almost 8 years and have had approx. 17 children through our doors. Many only stayed a bit, but some stayed quite a while, some never left - but they all have a piece of our heart. I thought I would never be able to stop - but am humble to know the voice of the Lord and so glad that He has made me content. Kaden is the last of our children...and I could not be more blessed.
Continue to rejoice with me as we enjoy the gift of family through the miracle of adoption!!
Blessings to you,
Renee - one very proud momma!
UPDATE: 7-22-05
Hello Friends and Family -
Today is the big day - it is 6:03 AM and in just a few hours we will be before the judge to finalize Kaden's adoption.
This has been a long process for us, and an emotional rollercoaster. When Kaden was placed with us at a mere three days old - my fervent prayer was that God would take control. We were told early on that Kaden's birth parents were mentally unstable. I have already attempted to raise a child like that, and it failed miserably. In my conversations with God, I prayed that Kaden would have a sound mind (2 Timothy 1:7) and if there was a reason that Kaden would be mentally unstable that God would release him from our home, as I truly felt I could not do it again. I trust the Lord has heard my prayers, and I believe that Kaden WILL have a sound mind and not be plagued by the illnesses of his birth parents. As I have shared before, Kaden does have many obstacles to overcome - and at this time, the reports of the medical professionals have not been promising. I believe the report of the Lord, but also realize that there are some things that at this time there are some issues that we are dealing with. Our prayer is that Kaden's life will be a testimony to God's grace, mercy and healing power.
Rejoice with us, as Kaden Nicholas becomes a Harris and our family is blessed by the miracle of adoption!
Renee
UPDATE: 7-20-05
Just wanted to let you know we took Jon into the doctor on Monday and ha has bronchitis. I was very concerned as his older sister just got over pneumonia. We are doing all we van to help Jon and to keep this from developing into pneumonia. He is just pitiful, his cough is wet and irritating. Because of the excess mucous production he is gagging, retching and vomiting a lot. I am not belittling when one of our "normal" kids get sick, but it is just so difficult when our "sickly" children get sick. Jon Jon is struggling so and really does not understand why he feels so lousy or why he is vomiting. He is very cranky and is coughing all night, so I know he is not sleeping well.
On a bit brighter note - Friday is almost here and we will be finalizing our adoption of Kaden - I am just way to excited!
As always, thanks for all you do. God Bless.
Renee
UPDATE: 7-16-05
Just wanted to let you all know that Friday, July 22nd, we will finalize the adoption of Kaden Nicholas Harris!
Rejoice with me as we finalize the fourth and final member of our family.
We ask that you continue to pray as the Lord leads; Kaden is a special little boy, who will need to overcome many obstacles, issues from his birth family and the concerns of the medical professionals. Our family will need/covet your prayers, support and encouragement in the years to come as we take on the awesome responsibility to parent this special blessing.
Rejoice with us as we celebrate the gift of family through the miracle of adoption.
I have attempted to attach a picture of Kaden and his adoption announcement.
Renee
 
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